Comment posted to the Annals of Internal Medicine regarding paper “Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Systematic Review for a National Institutes of Health Pathways to Prevention Workshop”
“First Do No Harm: Graded Exercise Therapy and Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome” Authored by: Lily Chu, Lucinda Bateman, Todd Davenport, Eleanor Stein & Staci Stevens,
To read our response and the original paper go to: http://annals.org/article.aspx?articleid=2322801
International Awareness Day
Here are the pictures of the Langevin Bridge in Calgary lit to celebrate 2014 International Awareness Day for ME/CFS, FM and MCS. Blue represents ME/CFS, purple Fibromyalgia and green MCS. The pictures were taken by local photographer Justin Smith. THANKS Justin.
You can see more of Justin’s work at: https://jsphoto.co/
At the end of each IACFS/ME conference is has become a tradition that Dr. Anthony Komaroff a professor at Harvard gives a summary of the highlights of the conference. This year’s presentation was particularly good and has been recorded.
Click here to listen to the audio of Dr. Komaroff’s 47 minute talk and view the slides (synched to audio).
“Mom Needs to Lie Down” is an 11 minute short film by Winnipeg film maker Taylor Leslie-Cole. The film premiered in Winnipeg last night to a full house at the “Free Press Café”.
The showing was followed by a Q&A with myself, Mindy Campbell ND and Lorilee Leslie-Cole who featured in the film and is the mother of the film maker.
Taylor’s next project is to make a short 2 – 3 minute version of the film with subtitles that can be shown in medical waiting rooms across Canada to raise awareness of ME/CFS.
Click here to view “Mom Needs to Lie Down”. Taylor can also be reached directly through her email: email@example.com
Click here to view Taylor Cole and Mindy Campbell ND on Winnipeg Breakfast Television from March 2, 2014.
Information about how to join the webcast will be posted shortly. If you want to be notified directly go to the contact us page and ask to join the newsletter list.
I am very excited to partner with Self Connection Books for this landmark event. May 12th is celebrated all over the world by patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivity and their supporters. It is also a day of advocacy and awareness.
The 2013 Calgary May 12th program will for the first time in Calgary use technology to allow the best speakers to present exciting information about treatment advances by two way web link. The audience will be able to hear and interact with the speakers in real time.
Click here to see the May 12 Event Information Poster.
Click here to read about the Speakers.
Overcoming challenges in therapeutic relationships with patients with ME/CFS
This paper, 3 years in the writing is a contribution towards improving the notoriously problematic therapeutic relationships between patients with ME/CFS and health care practitioners. My patients continually tell me of problems they encounter with other practitioners (and I’m sure sometimes with myself).
Eva Stormorken a nurse and PhD candidate who runs groups for ME/CFS and myself have listened to our patients and colleagues and have highlighted the most common challenges that arise. We then formulated solutions to those challenges. Dr. Bengt Karlsson, a nursing academic, helped us find language to describe our patient centered, collaborative approach.
Like the Psychiatric Guidelines paper I wrote in 2005, we submitted this paper to several journals and it was declined by all. Likely this is in part due to it being a theoretical paper and not research based. We feel having a strong therapeutic relationship is an essential prerequisite for good clinical care.
We hope the paper will be widely read and the hypotheses tested by others.
Click here to read the paper.
On May 12th, 2013 Dr. Lucinda Bateman presented a slide that summarized her view of the body systems involved in ME/CFS. There was high request for a copy of the slide and she has generously agreed to share it.
Click here for Dr. Lucinda Bateman’s systems slide from her May 12th presentation.
Three Part Video interview: Dr. Jerre Paquette is a retired associate professor, award-winning teacher, author of “Eat to Save Your Life”, and public speaker. His website can be found at: http://www.eattosaveyourlife.com/
Jerre interviewed me about ME/CFS: what it is? who gets it? how it is diagnosed? what can people do to manage their illness? and why I am hopeful that things are getting better in Canada.
The interview is in three parts and is aimed at the general public, not necessarily people who are highly educated about ME/CFS. Please pass the website address to anyone you think might be interested.
Each of the three parts is approximately 15 minutes long. Here are the videos:
Here are the instructions to join our Calgary ME/FM/MCS International Awareness Day Speaker Event: I recommend going to both of the links below to ensure you are familiar with the site and have the computer capacity to participate. To join the meeting and get into the webinar room, the following is the link. When the login page comes up, select Guest and then enter your name in the space provided. :http://prowebinars.adobeconnect.com/r19eynpq2ys/ You can test your computer’s setup by using the following link: http://prowebinars.adobeconnect.com/common/help/en/support/meeting_test.htm When I did this, I was prompted to download an add in.
A paper I wrote was recently pubished in the Psychiatric Times. The topic is how to differentiate ME/CFS and FM from common psychiatric disorders.
To access the article click on the link below an when you get to the Psychiatric Times webpage you must register which is free – . Stein E., Identifying and Treating Common Psychiatric Conditions Comorbid with Myalgic Encephalomyelitis and/or Fibromyalgia. Psychiatric Times. January 18 2013 30:1. Go to article