Clinical Practice Guidelines for ME/CFS

This CPG was drafted by an expert committee of Towards Optimal Practice (TOP).  TOP is a collaboration of the College of Physicians and Surgeons of Alberta and the Alberta Medical Association.  Toward Optimized Practice (TOP) helps Alberta physicians and the teams with whom they work implement evidence-based practices to enhance the care of their patients http://www.topalbertadoctors.org/home/  

I served as the content expert on the committee.  We also had one scientist/researcher, one patient advocate, one psychologist and 3 family physicians on the committee.  All the committee members have extensive knowledge of and experience with individuals with ME/CFS.  We had access to a professional librarian to access all of the literature needed and a professional guidelines facilitator to draft the guidelines. It was a positive experience with everyone agreeing on the importance of the task and having an understanding of the unmet needs of individuals with ME/CFS.  I am very proud of the guidelines.

My hope is that these guidelines will be promoted and used across jurisdictions in Canada and abroad. All family physicians in Alberta were sent an email about these guidelines. Please discuss them with your doctor.

“Identification and symptom management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS)

TOP’s new Clinical Practice Guideline (CPG) responds to the need for greater awareness that Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is a complex, chronic, debilitating physical condition that can be identified and successfully managed in the primary care setting.

The CPG aims to equip clinicians with the necessary knowledge and tools to identify and provide symptom management while empowering the patient by acknowledging the legitimacy of the condition and respecting the patient’s lived experience.”

To view both the CPG and summary document click here.

To view all TOP CPGs and/or subscribe for updates click here.


Registration Open for May 11th International Awareness Day Webinar

2016 International Awareness Day for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivity
Webinar: Wednesday May 11th  6:30 – 8:30 pm Mountain Daylight Time
Dr. Michael Moskowitz MD MPH – Featured in “The Brain’s Way of Healing” by Dr. Norman Doidge
Neuroplastic Transformation: Using Neuroplasticity to Cure Persistent Pain

Event Flyer –  Please email or post  2016 IAD Webinar Notice

As it becomes persistent, pain changes from a symptom to a disease.  This change is caused by changes in the pain processing centers in the brain. The changes in the brain cause changes in the rest of the body leading to a vicious circle.  Since the disease of pain is a neuroplastic process in the brain and not due to tissue injury, it is reversible.  Attend this webinar and learn how.

Dr. Moskowitz is Board Certified in both Psychiatry and Pain Medicine. He served as a member of the Examination Council for the American Board of Pain Medicine from 2006-2010.  He has been an Assistant Clinical Professor for the Department of Anesthesiology and Pain Medicine at the University of California, Davis since 2006. Dr. Moskowitz and Dr. Marla Golden have been working together since 2008 to develop a practical therapy which utilizes our brain’s ability to change itself (neuroplasticity) to cure persistent pain. They have published a manual outlining their approach complemented by animations and additional information on their website: www.neuroplastix.com

In this webinar Dr. Moskowitz will explain how and why Neuroplastic Transformation works.
The objective is to return the body and brain to normal function (not to live with pain).

Location: In person at Self Connection Books in Calgary, Canada or online
Dr. Stein and Psychologist Michelle Deslile from the Calgary Chronic Pain Centre will be in house as discussants.

Cost: $20 ($10 for low income)

Registration: http://www.selfconnection.ca/moskowitz


Registration Open for March 19th Diet and Lifestyle Webinar

Registration is now open  –  Webinar: Diet and Activity for optimal health in ME/CFS and FM

Date: Saturday March 19th, 2016

Time: 1:30 – 3:30 pm MST (Mountain Standard Time) 

Speakers:

Rory Hornstein Registered Dietician: Use gut bugs to be healthy and lose weight.
Cory Fagan BPE(Hons), MSc: Use heart rate and exercise test results to plan daily activities.

Location: Join in person at Self Connection Books or On Line

Self Connection Books is at:#125, 4611 Bowness Road NW,  Calgary, Alberta
Phone: 403.284.1486  Toll Free: 866.735.3457

Cost: $15.00/ $7.50 low income (to register as low income please call the office for the coupon code)

For Full Details and to Register go to: http://selfconnection.ca/index.php?option=com_content&view=article&id=1081&Itemid=13

Rory Hornstein Registered Dietician: Using gut bugs to be healthy and lose weight.
Ever wondered how you could have managed to put on weight over the years despite dieting the entire time? Turns out our gut bugs may be creating oversized guts. This session will explain how microbes influence how we eat, what we eat, how we get energy from our food, protect our immune system, help us harvest calories and produce key vitamins and nutrients. Rory Hornstein will explore what we can do to cultivate and enrich the critters in our gut on the path to better health. 

Cory Fagan BPE(Hons), MSc: Recommendations for physical activity and recovery with ME/CFS and FM
Cory and I have been working together for a few years offering the Stephens Protocol 2 day exercise testing. Cory will share what he is finding and how the results in individuals with ME/CFS compare to healthy individuals that he works with at his training facility TCR Sport Lab in Calgary.

  • His topics include: “you are not faking, something is off”. Physiological data to support ME/CFS. 
  • Using heart rate and exercise test results to “train” optimally.
  • Using cryotherapy to improve recovery from activity.

New Manual Prices

Due to increased cost of production the cost for my manual “Let Your Light Shine Through: Strategies for Living with ME/CFS, FM and MCS” has increased slightly.  All prices are in Canadian dollars.  We have a new shipment of both the B&W and Color coil bound manuals.

Download – $20
CD – $22 + shipping
Black and White coil paper manual – $29 + shipping
Color coil paper manual with tabs – $38 + shipping