Highlights from the IACFS/ME meeting available online

At the end of each IACFS/ME conference is has become a tradition that Dr. Anthony Komaroff a professor at Harvard gives a summary of the highlights of the conference. This year’s presentation was particularly good and has been recorded.

Click here to listen to the audio of Dr. Komaroff’s 47 minute talk and view the slides (synched to audio).


Mom Needs to Lie Down available for viewing on YouTube

“Mom Needs to Lie Down” is an 11 minute short film by Winnipeg film maker Taylor Leslie-Cole. The film premiered in Winnipeg last night to a full house at the “Free Press Café”.

The showing was followed by a Q&A with myself, Mindy Campbell ND and Lorilee Leslie-Cole who featured in the film and is the mother of the film maker.

Taylor’s next project is to make a short 2 – 3 minute version of the film with subtitles that can be shown in medical waiting rooms across Canada to raise awareness of ME/CFS.

Click here to view “Mom Needs to Lie Down”. Taylor can also be reached directly through her email: taylesliecole@gmail.com

Click here to view Taylor Cole and Mindy Campbell ND on Winnipeg Breakfast Television from March 2, 2014.


February 9th 2014 Sleep Talks posted on YouTube

February 9th, 2014 was a wonderful, informative afternoon on sleep from three experts in different disciplines.

Calgary photographer and videographer Neil Speers videotaped the event and created three videos, one for each speaker. 

Please check out Neil’s website and if you like the videos send him a thank you. He volunteered his time ! http://www.albertaportrait.com/

Maureen McQuarrie, the editor of my manual sent me a wonderful summary of the three talks.  Sleep presentations feb 2014 Click here to read Maureen’s summary.

Click here to access all three talks. They are posted on YouTube.

Dr. Diana Monea is an Optometrist graduating from University of Waterloo in 1978. She manages, owns and actively works in 3 optometric practices in 2 provinces, Saskatchewan and Alberta. She consults as an independent consultant with legal firms and the Associations of Optometrists in Canada. She has been a member of the E- team since it’s origin. Dr. Monea talked about the impact of blue light on eye health and sleep. Her webpage is: http://www.eyehealthcentres.ca/calgary/eye-doctors/diana-monea.html

Click here to take a closer look at Dr. Monea’s slides.

Click here to view Dr. Monea’s presentation.  

Dr. Jerome Alonso MD is a certified sleep physician having trained at the world renowned sleep clinic at Stanford University. He is the owner/operator of Canadian Sleep Institute located across from the Foothills Medical Centre. He talked about: 1. The sleep changes he has seen in patients with ME/CFS and FM 2. When someone should consider getting a sleep study and 3. Strategies to improve sleep.

Click here to take a closer look at Dr. Alonso’s slides. He didn’t include all of his slides in this power point.

Click here to view Dr. Alonso’s presentation.

Dr. Chris Carruthers PhD, with Alberta Health Services – Knowledge Management, also offers health consulting services for those with cancer and other chronic illnesses. She has clearly seen that changing unhealthy sleep patterns can help resolve so many common symptoms you may experience. She is completely recovered from 7 years of ME/CFS, and her workbook, “Sleep Well Tonight” outlines three simple steps that can help you sleep better quickly. Dr. Carruthers shared her holistic approach to healing and gave a lot of hope to those attending. Dr. Carruther’s website is: http://www.chriscarruthers.com/

Click here to view Dr. Carruthers’ presentation.


The May 12th event will be webcast live and recorded.

Information about how to join the webcast will be posted shortly. If you want to be notified directly go to the contact us page and ask to join the newsletter list.

I am very excited to partner with Self Connection Books for this landmark event. May 12th is celebrated all over the world by patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivity and their supporters. It is also a day of advocacy and awareness.

The 2013 Calgary May 12th program will for the first time in Calgary use technology to allow the best speakers to present exciting information about treatment advances by two way web link. The audience will be able to hear and interact with the speakers in real time.

Click here to see the May 12 Event Information Poster.
  May-12th-Awareness-Event-Poster.pdf

Click here to read about the Speakers.
  May-12th-speaker-information.pdf


New Paper Posted

Overcoming challenges in therapeutic relationships with patients with ME/CFS

This paper, 3 years in the writing is a contribution towards improving the notoriously problematic therapeutic relationships between patients with ME/CFS and health care practitioners. My patients continually tell me of problems they encounter with other practitioners (and I’m sure sometimes with myself).

Eva Stormorken a nurse and PhD candidate who runs groups for ME/CFS and myself have listened to our patients and colleagues and have highlighted the most common challenges that arise. We then formulated solutions to those challenges. Dr. Bengt Karlsson, a nursing academic, helped us find language to describe our patient centered, collaborative approach.

Like the Psychiatric Guidelines paper I wrote in 2005, we submitted this paper to several journals and it was declined by all. Likely this is in part due to it being a theoretical paper and not research based. We feel having a strong therapeutic relationship is an essential prerequisite for good clinical care.

We hope the paper will be widely read and the hypotheses tested by others. 

Click here to read the paper.


How to improve relations between patients and practitioners … New paper posted on publications page.

This paper, 3 years in the writing is a contribution towards improving the notoriously problematic therapeutic relationships between patients with ME/CFS and health care practitioners. My patients continually tell me of problems they encounter with other practitioners (and I’m sure sometimes with myself). Eva Stormorken a nurse and PhD candidate who runs groups for ME/CFS and myself have listened to our patients and colleagues and have highlighted the most common challenges that arise. We then formulated solutions to those challenges. Dr. Bengt Karlsson, a nursing academic, helped us find language to describe our patient centered, collaborative approach. Like the Psychiatric Guidelines paper I wrote in 2005, we submitted this paper to several journals and it was declined by all. Likely this is in part due to it being a theoretical paper and not research based. We feel having a strong therapeutic relationship is an essential prerequisite for good clinical care. We hope the paper will be widely read and the hypotheses tested by others. Click here to read the paper.