Alberta Healthy Living Program pilots a course on ME/CFS

The Alberta Healthy Living Program offers free, province wide, patient education on a wide variety of topics of interests to readers of this newsletter including chronic pain, pacing, sleep, diet, Irritable Bowel Syndrome and mood.

A group of hard working expert patients has developed a creative, engaging 2 hour session which will run in Calgary in the fall 2017/winter 2018.

We need patients to join us online on Monday May 22nd to provide feedback as we do a run-through of the course.
To join us on May 22nd, contact Dr. Stein by email or phone.

We need Calgary based facilitators (teachers) for this course.
If you have teaching and/or presentation skills and are interested please contact Dr. Stein for more information. You will receive training and practice and will always have a teaching partner.

Thank You to the new Canadian non-profit Action CIND who provided web access for our meetings and developed some short video clips for the course

Thank You to the ME Society of Edmonton who is supporting this program with honoraria for the expert patient facilitators.

Click here for the schedule of upcoming programs through the Alberta Healthy Living Program

We hope the course will be well received and will grow to other areas of the province.  Please mention the course to your health care professional.

Disability Support in Canada – Learn more on June 16th, 2017

FREE Educational Event/Webinar on CPP-D, Provincial disability and private insurance

 Sponsored by the National ME/FM Action Network

  • Webcast by Mike Finch of Self Connection Books
  • Moderated by Dr. Ellie Stein, Calgary physician
  • All interested in learning about disability supports welcome (not illness specific)
Date: Friday June 16th 2017 at 1 – 4:30 pm Mountain Daylight Time
Location: Cardel Theatre – 180 Quarry Park Blvd S.E. Calgary, AB
To register for this free event go to:

This event will be recorded and will be freely available on the website of the ME/FM Action Network after the event.

If you want to pose questions to the speakers you must attend either in person in Calgary or by web on June 16th.

Click here for a pdf notice.  Please forward  to anyone who may be interested to attend.

If you have a question for one of the speakers please forward them to me well before the date so that I can forward  to the speaker in question.

Speakers: All of the speakers are volunteering their time to participate in this educational forum.
We are very thankful to them for the opportunity to learn more about applying for and appealing disability supports.

CPP-D: Kris Johnson (speaking by web from Ottawa)

Kris is the Director General of the CPP-Disability Directorate within Employment and Social Development Canada

AISH: Dale Beesely (speaking by web from Edmonton)

Dale is the Statutory Director for the AISH program and Acting Executive Director of Financial Supports within the newly created Alberta Ministry of Community and Social Services.

Do I Have a Case? James Ludwar (in person)

James Ludwar is a benefits and disability lawyer in Calgary who serves Alberta and Saskatchewan. James founded Ludwar Law in 2012 and has represented many individuals with ME/CFS and FM.

Employment and Disability: Hugh Scher (speaking by web from Toronto)

Hugh has extensive experience in employment, human rights and disability insurance matters.  He has been involved in some of the most important disability decisions for ME/CFS in Canada. His firm, Scher Law, has offices in Toronto and Ottawa.

Patient Advocate: John Wodak (by web from Edmonton)

Over the past 20+ years John has has provided advice and/or assistance to more than 700 individuals applying for CPP-D and/or AISH.  He is a co-author of a Guide to CPP-D applications and appeals, available for downloading on the National ME/FM Action Network’s website.